Living with ACC

It is really hard to be diagnosed with cancer or love someone who is. This emotional journey will be life-changing. There is no right or wrong way to feel and every patient or loved one may react differently. Some patients will want to know everything with a take-charge attitude while others are simply overwhelmed by the diagnosis. Similarly, loved ones or caregivers may exert extra energy to research and find cures or treatments. Regardless, you are not alone and we are here for you​

If you or someone you love has ACC, knowing what to expect can help you cope. Whether you’re trying to come to terms with this cancer diagnosis, going through treatment or grappling with fears of recurrence or death, there’s no right or wrong way to feel.

After your diagnosis, patients have a make a number of decisions about medical treatment. These decisions can be complicated by anxiety, unfamiliar words and a sense of urgency.
Here are a few tips from patients and caregivers:

Tips for the newly diagnosed & Caregivers

Tips For Managing A Recurrence

━ get in touch

Join Our Community

It’s important to remember that you don’t have to deal with this diagnosis on your own. Many patients are living very full lives with this rare cancer. Talking with people close to you or joining peer support groups or patient events can be a great comfort during your journey, and your treatment outcome is more likely to be positive as well.