Locating a Physician
An important step for a new patient is locating a physician who is knowledgeable about ACC and has some experience treating it within their area of specialty. To help with that process, the ACCOI and our partners the ACCRF have combined efforts to provide a list of physicians who have treated ACC patients. This list is continually updated, and can be used as simply a starting point. There are many issues surrounding selecting a physician, and each patient needs to make their own decisions based upon their personal knowledge, comfort zone, preferences, relationship with their physicians, where they live, and their available financial and insurance resources.
If you are comfortable with the physician you have selected, but they are limited in their knowledge of ACC and wiling to learn more, an option is for them is to contact a physician on our list to find out more about this disease. That has become more common for physicians to speak with their peers to increase their knowledge and awareness about a rare disease like ACC. You can also print out a few of the medical papers on our site to give to your doctor which may provide them with a more comprehensive overview of ACC and the more normal treatment options. You can find a list of those documents on our FAQ page.
To view or download the Physician's List in .xls format using MS Office Excel 2000 or newer.
To view or download the Physician's List in .PDF format using Adobe Reader.
To view the Physician's List in HTML format (suitable for tablets, phones or computer)
To learn how to obtain a 2nd opinion from a physician without leaving home.
Note: PDF files require a viewer to use so we provide a link for a free download of Adobe Reader.
Adenoid Cystic Carcinoma Organization International 