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Patient Support Services

On-line Support Group

We offer several ways for ACC patients and supporters to connect with others online. These include an email based Yahoo Online Support Group with around 1000 members, a new website based community site, and of course a Facebook page. To learn more  Click here.

FAQ's

A list of Frequently Asked Questions with answers is available. Click here.

Phone Support

A toll free ACC Patient Support Line at 1-888-223-7983 for any ACC patients who would like to speak with another ACC survivor to get questions answered. Additional information is available. Click here.

Physicians List

The ACCOI and our partners the ACCRF have combined efforts to provide a list of physicians who have treated ACC patients. This list is continually updated, and can be used as a starting point in locating a physician who has had some experience with ACC. Click here. 

Newly Diagnosed?

A special section on our web site to help newly diagnosed patients. Click here.  

Regional Gatherings

Annual regional gatherings of ACC patients in the US and Europe that are organized to provide ACC patients the chance to meet others dealing with this rare disease. Click here.

Insurance

National organizations providing insurance information and resources. Click here.

Legal Concerns

National organization providing legal advise concerning disability, health care, and estate planning. Click here.

Recommended Books

Reading materials recommended by other Survivor/Fighters of ACC. Click here.

 

Note: PDF files require a viewer to use so we provide a link for a free download of Adobe Reader. Click here.