We fund research through your donations. Because ACC is rare, pharmaceutical companies do not find it economically feasible to fund research for ACC. The large cancer organizations do not fund research for ACC. They fund research for the more common cancers. ACC patients, their friends and families raise funds for research.
|
|
Adenoid Cystic Carcinoma Organization International
|
P.O. Box 15482
San Diego, CA 92175-5482
E-mail Us
|
Adenoid cystic carcinoma ("ACC") is a rare cancer that usually occurs in areas of the head and neck but can occur in other parts of the body as well. Both children and adults may develop ACC, although it occurs more often in adults over age 40.
This website provides information about treatment, research, clinical trials, organizations offering help with medical expenses, and more.
We maintain a free email Information Group where ACC patients and caregivers share all types of information about ACC in an atmosphere of support. The Information Group moderator reads each email before forwarding to the group and will not forward inappropriate emails. Click on the link at the left to join.
We are a 501(c)(3) all-volunteer nonprofit. Donations to us are tax deductible in the United States.
|
|
To read more about ACC, some of the research we have funded, and the ACC tumor registry,
CLICK HERE
|
|
For general information about rare cancers,
CLICK HERE
|
|
To find adenoid cystic carcinoma clinical trials,
CLICK HERE
|
|
For information on radiation treatments,
CLICK HERE
|
  
Picture 1 above: “In the center is a peripheral nerve. It is surrounded by malignant epithelial cells.
Perineural invasion is a hallmark of adenoid cystic carcinoma and explains, in part, its tendency to spread.”
USC Oral Pathology
|
|
To view a list of chemotherapies that some of our Information Group members have tried, and their results,
CLICK HERE
|
|
To see where some members of our email Information Group live,
CLICK HERE
. The members on this list represent only a small portion of total membership. There may be members who live in your city who are not on the list.
|
To find out how you can raise funds for research just by shopping online,
CLICK HERE
|
Personal information that is provided to Adenoid Cystic Carcinoma Organization International will not be shared or sold by Adenoid Cystic Carcinoma Organization International. Lists on this website that provide information on various treatments that have been tried by members of our email Information Group, and the results of those treatments, is provided anonymously.
DISCLAIMER
Information on this website is provided for informational purposes only. Medical advice and services are not being offered. All information found on this website should be reviewed with a health care professional. Adenoid Cystic Carcinoma Organization International is not responsible for errors or any consequences arising from the use of this information.
|
