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CyberKnife
Radiation
Treatments
There is a variety of new and unique types of radiation systems
available for treating ACC that have become much more available
all over the world. Many ACC survivors have found these
treatments helpful in managing their ACC.
Learn More
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Our Mission and Purpose
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The purpose of the ACCOI is to help find a cure for ACC,
and create a community that shares information in an
atmosphere of support. |
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About ACCOI |
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Greetings from Dan! |

Welcome to the ACCOI website,
which we recently updated with some new information.
This is the first phase of a major project to update our
site with the help of a very capable team of ACC
survivors.
Stay tuned... stay connected... keep an eye on us...
great things are emerging in the day ahead! |
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Newly Diagnosed with ACC? |
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site that has been built and developed by other ACC
Survivors who have faced many of the same issues you now
face. We have a resource center designed specifically
to help you find answers to your questions, information,
ideas, and suggestions. You are not alone... |
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Newly Diagnosed |
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Get Togethers with Neighbors |
We
value supportive relationships, meeting other ACC
survivors in our area, and sharing our knowledge and
support. Here are pictures of a few of the past
get togethers.
View Pictures |
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How Rare is ACC? Quick Facts... |
- Each year there are
approximately 1200 people in the US diagnosed with
ACC, which is less than 1 out of every 1000 new
cases of cancer diagnosed each year.
- The Rare Disease Act of 2002 (HR
4013) defines a rare disease as one that affects
less than 200,000 of people in the US.
- There are approximately 4,400
Americans alive today living with ACC.
- ACC primary tumors occur in 38
different organs of the body, with approximately 58%
occurring in the head and neck region.
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Learn more about ACC Statistics |
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Research
Because ACC is so rare, pharmaceutical companies and large
cancer organizations do not fund research for ACC. But we now
have tremendous hope. Our partners at the Adenoid Cystic
Carcinoma Research Foundation have been making incredible
progress with research for ACC.
Learn more about the
ACCRF |

Join Our 800 Member Group
You can get your questions answered, learn more about ACC and
connect with others online and in your area. Our members
share information and hope in an atmosphere of support.
Learn More |

Prudence Jackson
Born
November 27, 1948
Died
July 12, 2008
This website is dedicated to our founder and friend Prudence,
who gave so much, to so many, for so many years, in support of
the ACC community. |

ACCOI is a 501(c)(3) nonprofit organization. All donations
are tax deductible.
Donations |
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