Adenoid Cystic Carcinoma Organization International 
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What Is ACC
Newly Diagnosed?
FAQ for ACC
Recommended Physicians List
Tumor Donations
Radiation Information
Lung Mets Treatment
Chemotherapy
Clinical Trials
Complimentary & Alternative Medicine
Glossary of ACC Terms
Memorial for Those We Have Lost


CyberKnife

 Radiation Treatments
There is a variety of new and unique types of radiation systems available for treating ACC that have become much more available all over the world.  Many ACC survivors have found these treatments helpful in managing their ACC.
Learn More
Our Mission and Purpose
The purpose of the ACCOI is to help find a cure for ACC, and create a community that shares information in an atmosphere of support.
About ACCOI
Greetings from Dan!

Welcome to the ACCOI website, which we recently updated with some new information. This is the first phase of a major project to update our site with the help of a very capable team of ACC survivors.


Stay tuned... stay connected... keep an eye on us...
great things are emerging in the day ahead!
Newly Diagnosed with ACC?
Welcome to this site that has been built and developed by other ACC Survivors who have faced many of the same issues you now face.  We have a resource center designed specifically to help you find answers to your questions, information, ideas, and suggestions.  You are not alone...
Newly Diagnosed
Get Togethers with Neighbors
We value supportive relationships, meeting other ACC survivors in our area, and sharing our knowledge and support.  Here are pictures of a few of the past get togethers.

View Pictures
How Rare is ACC? Quick Facts...
  • Each year there are approximately 1200 people in the US diagnosed with ACC, which is less than 1 out of every 1000 new cases of cancer diagnosed each year.
  • The Rare Disease Act of 2002 (HR 4013) defines a rare disease as one that affects less than 200,000 of people in the US.
  • There are approximately 4,400 Americans alive today living with ACC.
  • ACC primary tumors occur in 38 different organs of the body, with approximately 58% occurring in the head and neck region.
Learn more about ACC Statistics

Research
Because ACC is so rare, pharmaceutical companies and large cancer organizations do not fund research for ACC.  But we now have tremendous hope.  Our partners at the Adenoid Cystic Carcinoma Research Foundation have been making incredible progress with research for ACC.
Learn more about the ACCRF

Join Our 800 Member Group
You can get your questions answered, learn more about ACC and connect with others online and in your area.  Our members share information and hope in an atmosphere of support.
 Learn More

Prudence Jackson
Born November 27, 1948
Died July 12, 2008
This website is dedicated to our founder and friend Prudence, who gave so much, to so many, for so many years, in support of the ACC community.

ACCOI is a 501(c)(3) nonprofit organization.  All donations are tax deductible.
Donations
PRIVACY POLICY
Personal information that is provided to Adenoid Cystic Carcinoma Organization International will not be shared or sold by Adenoid Cystic Carcinoma Organization International. Lists on this website that provide information on various treatments that have been tried by members of our email Information Group, and the results of those treatments, is provided anonymously.

DISCLAIMER
Information on this website is provided for informational purposes only. Medical advice and services are not being offered. All information found on this website should be reviewed with a health care professional. Adenoid Cystic Carcinoma Organization International is not responsible for errors or any consequences arising from the use of this information.
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